Life beyond diagnosis: The psychosocial experiences of individuals with a sibling with autism: A qualitative study


Kisecik Sengul Z., SALIK H., BERK S.

Journal of Pediatric Nursing, vol.88, pp.460-466, 2026 (SCI-Expanded, SSCI, Scopus) identifier identifier

  • Publication Type: Article / Article
  • Volume: 88
  • Publication Date: 2026
  • Doi Number: 10.1016/j.pedn.2026.03.010
  • Journal Name: Journal of Pediatric Nursing
  • Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Social Sciences Citation Index (SSCI), Scopus, CINAHL, MEDLINE
  • Page Numbers: pp.460-466
  • Keywords: Autism spectrum disorder, Psychological resilience, Qualitative research, Siblings, Social support
  • Hakkari University Affiliated: Yes

Abstract

Aim This study aims to explore the psychosocial experiences of siblings of children with autism spectrum disorder (ASD) residing in the Eastern and Southeastern Anatolia regions of Türkiye. Methods A qualitative approach grounded in interpretative phenomenological analysis (IPA) was employed. The sample comprised 27 siblings from these regions. Data were gathered through in-person, semi-structured interviews following a criterion sampling strategy. Results Five primary themes were identified: (1) daily interaction and experiences, (2) future concerns and responsibilities, (3) family dynamics and support, (4) social perceptions and external reactions, and (5) personal developments and values. Conclusions Siblings of children with ASD encounter complex, multifaceted psychosocial challenges. While fostering positive attributes such as resilience and empathy, they simultaneously shoulder emotional burdens and anxiety, necessitating targeted support. Practical implications Structured psychosocial programs are essential to address the emotional needs and future anxieties of siblings. Interventions enhancing family communication and societal awareness may facilitate better adjustment and promote overall family balance.